Her Autism Story in 10 tweets

Monday was World Autism Day and I tweeted some thoughts about our journey. Our story is different than the typical Autism story – for one, it’s my daughter that was diagnosed. That makes her a minority in the Autism world where boys are diagnosed about five times more often than girls.

Last week, you may have seen the reports that Autism diagnoses are up to 1 in 88 kids – nearly twice as common as previously believed. The evidence points to better diagnostic practices and I, for one, could not be happier about it. Early interventions make a world of difference in Autism therapies, so if we can get every kid on the spectrum the support that they need – then there is hope for a brighter future.

Her story

Every kid with Autism has their own story, their own way of expressing the diagnosis. I have read everything I could lay my hands on, but found that the best resources for us when written about girls on the spectrum. Girls are different than boys and I think that once these differences are better understood we will see the incidence rate rise even more.

 And that will mean that more kids will get the help and support they need.

Some resources I found helpful are listed below. Both are written with the older Aspie in mind, and Aspergirls in particular had great chapters on being happy, as well as a chart showing the differences between boys and girls with Asperger’s.

weekend recap

Friday

         Sheila came over to do some computer work because my printer works and hers does not.

         I started a cute green and red purse, bought some books on Amazon

         My Magnolia tree was replaced and planted so I can see it out the office window.

         Becca went to Kiley’s house after school with Andrea and Mackenzie, Zack went to play with Jared, too.

         Lizzi worked on her Manga

         At about 7:30, Joe Walters came over to talk about the PTA Conference final details.  We called Murlin since he was waiting for the Comp Corps to show up at his house. 

         We had a quiet evening, just us girls and the TV.

         I almost finished Vampire Knight 2

 

Saturday

         I woke up and saw Scott had texted from the airport.  He was on his way home!

         I made bagels for everyone

         We all went to Kirk Park for volleyball – I worked with our team on the spike-set combo, moving their feet and forearm passes.

         Lizzi brought Sweetie and chatted with Dani

         The girls cleaned the kitchen while I ran errands.

         Lizzi started reading Thirteen and worked on her manga

         Rebecca worked on her Mac and Cheese story

         We went to Target to get Lizzi a bathing suit, ended up at the mall

         Daddy came home about 7:30, just in time for pizza!

         He brought me a box of chocolates from Switzerland

         We opened a bottle of Matchbook “Tinto Rey” 2005

 

Sunday

         At 7 am Scott’s buzzing phone woke me up.  I don’t know how early that started.

         Daddy made breakfast: chocolate chip pancakes for the girls, scrambled eggs with onions and cheese for us

         The 9:45 church service at St. Timothy’s – the girls in their Sunday School classes and Scott and I sitting together holding hands throughout the service.

         I noticed they have removed the pews from the Fellowship Hall – must be getting ready to move them back into the Sanctuary

         Scott took the girls home while I went to Bell Choir Practice

         I showed the children’s choir how we ring the bells and make different sounds with them

         We all did yard work – mowing, weeding, edging, poop scoop

         Scott fixed the sprinklers so now I think the raised bed will get water

         I put the last stitch in my cute new purse

         the 4-H Creative Writing Project met and we reviewed stories for our end of year book

         I put the new knobs on Becca’s hutch and put the glass back into the doors.  The handles we bought are the wrong size for the holes. sigh.

         Dinner was Halibut, Couscous, and a garden salad with a light vinaigrette (courtesy of Becca)

         Becca made her ecosystem – 3 worms, a mint plant, 3 tomatoes, soil, water, rocks (of course!).

         Lizzi worked on her manga

         Jetlag caught up with Scott and he was out before 8 pm.

         Tonight, Becca is thankful for yard work, worms, and ecosystems.